Supreme Court Informed: North Indian States Not Declaring Cancer Notifiable Due to High Tobacco Use

The Supreme Court of India has been informed that several North Indian states, characterized by high rates of tobacco and alcohol consumption, are reluctant to declare cancer a notifiable disease. This revelation came during the hearing of the case Anurag Srivastava v. Union of India and Ors. on Monday, where the petitioner argued that the failure to notify cancer undermines public health surveillance and violates the fundamental right to life under Article 21 of the Constitution. The submission highlights a critical gap in India's public health infrastructure, particularly in states where lifestyle-related cancer risks are elevated.

The information, presented to a bench of the Supreme Court, stated that "some North Indian States with high tobacco and alcohol consumption are unwilling to declare cancer as a notifiable disease ." This reluctance, according to the petitioner, impedes the collection of accurate epidemiological data, hinders preventive measures, and delays treatment for thousands of patients. The court has taken note of the submission and is expected to examine the constitutional and statutory obligations of state governments in this regard.

The Legal Framework of Notifiable Diseases

A notifiable disease is one that must be reported to government authorities by law, enabling timely tracking, containment, and resource allocation. Under the Epidemic Diseases Act, 1897, and various state public health acts, governments have the power to designate diseases as notifiable. However, cancer has not been uniformly declared notifiable across India. While some states like Tamil Nadu and Maharashtra have taken steps to notify cancer, others, particularly in the North, have resisted.

The right to health, though not explicitly enumerated as a fundamental right, has been read into Article 21 of the Constitution by the Supreme Court in landmark judgments such as Parmanand Katara v. Union of India and Paschim Banga Khet Mazdoor Samity v. State of West Bengal . The state's duty to protect public health includes the obligation to establish effective disease surveillance systems. Declaring cancer as notifiable is a key component of such systems, as it allows for the collection of incidence and mortality data, identification of high-risk populations, and formulation of targeted interventions.

The Case: Anurag Srivastava v. Union of India

The petition filed by Anurag Srivastava, a public health activist, seeks a direction from the Supreme Court to compel all states and union territories to declare cancer a notifiable disease. The petitioner contends that the lack of uniformity in notification hampers the National Cancer Registry Programme and impedes the implementation of the National Health Policy, which aims to reduce premature mortality from non-communicable diseases by 25% by 2025.

During the hearing, the petitioner's counsel highlighted that states like Punjab, Haryana, Uttar Pradesh, and Rajasthan have some of the highest tobacco and alcohol consumption rates in the country. These states also report a significant burden of oral, lung, and esophageal cancers. Despite this, they have not made cancer notifiable, citing concerns over administrative burden, privacy issues, and potential stigmatization of patients. The Supreme Court was informed that these states have not provided any concrete plan or timeline for implementing notification.

Constitutional and Statutory Obligations

Under the Seventh Schedule of the Constitution, public health and sanitation fall under the State List (Entry 6), while population control and family planning are in the Concurrent List (Entry 20A). However, the Union has the power to issue directions to states under Article 256 to ensure compliance with laws made by Parliament. The Epidemic Diseases Act, 1897, and the Disaster Management Act, 2005, empower the central government to take measures to prevent the spread of dangerous diseases.

Legal experts argue that the failure to notify a disease that accounts for nearly 9% of all deaths in India (as per ICMR data) could amount to a violation of the state's duty under Article 21. In Consumer Education and Research Centre v. Union of India , the Supreme Court held that the right to health includes access to information necessary for the protection of health. By not declaring cancer notifiable, states deny the public and health authorities critical data needed for early detection and prevention.

The Public Health Imperative

Cancer is the second leading cause of death globally, and India is witnessing a rising incidence, with over 1.3 million new cases annually. Tobacco use alone accounts for about 30% of all cancers in India, and alcohol consumption is linked to several types including liver, breast, and colorectal cancers. The reluctance of North Indian states to notify cancer is particularly concerning because these states have high prevalence of both risk factors.

Without mandatory notification, cancer registries rely on voluntary reporting from hospitals and pathology labs, leading to underreporting. A 2020 study by the Indian Council of Medical Research found that only 10% of cancer cases in India are captured by population-based registries. This data gap affects cancer control planning, resource allocation, and research. For example, without accurate data, the government cannot identify clusters of cancer cases linked to environmental or occupational hazards.

Judicial Scrutiny and Potential Directions

The Supreme Court's intervention in this matter could have far-reaching consequences. The bench may issue directions to the Ministry of Health and Family Welfare to formulate a uniform policy for notifiable diseases, or it may direct the defaulting states to comply within a specified timeframe. The court could also invoke its powers under Article 142 to pass orders necessary for doing complete justice.

Past precedents suggest that the Supreme Court is willing to step in on public health issues. In Murli S. Deora v. Union of India , the court banned smoking in public places. In V. Krishna Rao v. State of Andhra Pradesh , it directed the government to provide emergency medical care to accident victims. A similar proactive approach in the present case could lead to a comprehensive notification framework for non-communicable diseases.

Impact on Legal Practice and Policy

For legal practitioners, this case underscores the growing intersection of constitutional law and public health. Lawyers handling health rights litigation will need to familiarize themselves with the Epidemic Diseases Act, the National Health Policy, and the standards set by the World Health Organization for disease surveillance. The case also raises issues of federalism: to what extent can the Union compel states to adopt public health measures?

Corporate and healthcare lawyers may see implications for data privacy, as mandatory notification involves collection of patient information. The Supreme Court will have to balance public health needs with the right to privacy, as recognized in Justice K.S. Puttaswamy v. Union of India . However, the court has previously held that privacy is not absolute and may be restricted for legitimate state interests like public health.

Conclusion

The Supreme Court's hearing in Anurag Srivastava v. Union of India brings to light a critical public health failure: the reluctance of some North Indian states to declare cancer a notifiable disease. The court's observations and eventual order could reshape India's approach to disease surveillance and reinforce the state's duty to protect the right to health. As the case progresses, the legal community will be watching closely for directions that may compel uniformity in notifiable disease policies across the country. For now, the court has taken the submission on record, and the matter is likely to be listed for further hearing. The outcome will not only affect cancer control but also set a precedent for how courts address gaps in public health governance.