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2021 Supreme(MP) 117

MOHAMMAD RAFIQ, VIJAY KUMAR SHUKLA
State of Madhya Pradesh – Appellant
Versus
Prajwal Shrikhande – Respondent


Advocates:
Advocate Appeared:
For the Appellant :Swapnil Ganguly, Learned Deputy Advocate General
For the Respondent: Devashish Sakalkar and Vikram Singh, Learned Counsels

JUDGMENT :

Mohammad Rafiq, CJ.

Hearing convened through Video Conferencing:

1. This writ appeal under Section 2(1) of the M.P. Uchcha Nyayalaya (Khand Nyayapeeth Ko Appeal) Adhiniyam, 2005 has been filed by appellants State of M.P. & others challenging the order dated 22.6.2020 (Annexure WA/1) and the order dated 15.12.2020 (Annexure WA/2) passed by the Single Bench in Writ Petition No. 18974/2018 filed by respondent No. 1 Prajwal Shrikhande.

2. Respondent No. 1/writ petitioner approached this Court challenging the order dated 23.7.2018 (Annexure P/1) passed by the Mission Director, RBSK, NHM, Bhopal and seeking a direction to the respondents i.e. State of M.P. and Union of India to provide benefit of the "National Policy for Treatment of Rare Diseases" (Annexure P/2) to the son of the petitioner named Master Harshal Shrikhande, aged 4 years.

3. Case of the respondent No. 1/writ petitioner before the learned Single Judge was that his son is suffering from rare disease named "Gaucher". The Central Government, Ministry of Health and Family Welfare promulgated a policy known as "National Policy for Treatment of Rare Diseases" after conducting a comprehensive study with the help of the expe

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