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2023 Supreme(Del) 1140

PRATHIBA M. SINGH
Master Medhansh Jhawar @ Madhav Through His Natural Guardian – Appellant
Versus
Rajesh Bhushan – Respondent


Advocates appeared:
CONT.CAS(C) 415/2022 & CM APPL. 18280/2022
Mr. Rahul Malhotra & Ms. Tanya Kumari, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Kirtiman Singh, CGSC, Ms. Vidhi Jain, Advocate for UOI.
Mr. Rajiv Manjhi, Joint Secretary, Ministry of Health and Family Welfare in person.
Mr. Divyam Nandrajog, Panel Counsel, GNCTD with Mr. Mayank Kamra, Advocate for R-2.
Mr. Tanveer Oberoi and Mr. Jaswinder Singh, Advocates, for the Petitioner.
Dr. Madhulika Kabra and Dr. Shefali Gulati in person.
W.P.(C) 5315/2020 & CM APPL. 19189/2020, 4237/2023, 7519/2023
Mr. Rahul Malhotra & Ms. Tanya Kumari, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, Mr. Sidharth Luthra, Senior Advocate with Mr. Asif Ahmed, Mr. Akshat Kumar, Mr. Karanvir Gogia, Mr. Kushagra Raghuvanshi, Advocates, for the Petitioner.
Ms. Nidhi Raman CGSC with Mr. Rudra Paliwal, Advocates,
Mr. Kirtiman Singh, CGSC, Ms. Vidhi Jain, Advocate for UOI.
Mr. Ripu Daman Bhardwaj, CGSC for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
Mr. Abhishek Yadav and Mr. Amit Kumar, Advocates for BIRAC.
Dr. Kanika, AIIMS.
Dr. Madhulika Kabra, (AIIMS).
Dr. Sheffali Gulati, (AIIMS).
Mr. Rajiv Manjhi, Joint Secretary, Ministry of Health and Family Welfare.
Mr. Arvind Singh Tanwar, Official from the Ministry.
W.P.(C) 11610/2017 & CM APPL. 27637/2018, 44016/2022
Mr. Ashok Agarwal, Mr.Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Vanshay Kaul, Advocate for Mr. Sameer Vashisht, ASC, Civil GNCTD.
Mr. Vijay Joshi, Senior Panel Counsel of UOI with Mr. Kuldeep Singh, Advocate, for the Respondents.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
Mr. Saurabh Chauhan, Mr. Varun Jain, Advocates for the Intervenors
W.P.(C) 2943/2020 & CM APPLs. 10227/2020, 6633/2022, 7534/2023
Mr. Rahul Malhotra & Ms. Tanya Kumari, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Anuj Aggarwal, ASC, GNCTD, Ms. Ayushi Bansal, Mr. Sanyam Suri and Ms. Arshya Singh, Advocates for R-2 and 4.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 10782/2020 & CM APPL. 33828/2020
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Amrita Prakash, CGSC and Mr. Vishal Ashwani Mehta, Advocates, for Respondents.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 322/2021 & CM APPL. 812/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Ajay Digpaul and Mr. Kamal Digpaul with Ms. Swati Kwatra, Advocates for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 1491/2021 & CM APPLs. 4291/2021, 8671/2022
Mr. Rahul Malhotra & Ms. Tanya Kumari, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Kirtiman Singh & Ms. Vidhi Jain, Advocates, for the Respondents.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 1511/2021 & CM APPL. 4331/2021, 8616/2022
Mr. Rahul Malhotra, Advocate, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Rishabh Sahu, Central Govt Senior Counsel with Mr Sameer Sharma, Advocate for UOI.
Mr. Ghanshyam Mishra, Advocate for R-1.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 1611/2021 & CM APPL. 4600/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Bharathi Raju, Senior Panel Counsel with Mr. Rohit Singh, Advocate for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 3662/2021 & CM APPLs. 11103/2021, 25590/2021, 32504/2021
Mr. Aditya Chatterjee and Mr. Ishaan Karki, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Anuj Aggarwal, ASC, GNCTD, Ms. Ayushi Bansal, Mr. Sanyam Suri and Ms. Arshya Singh, Advocates for R-2.
Mr. Ripu Daman Bhardwaj (CGSC) for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 3682/2021 & CM APPL. 11153/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. T.P. Singh, Senior Central Govt. Counsel for R-1.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 3689/2021 & CM APPL.11179/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Sanjeev Uniyal and Mr. Dhawal Uniyal, Advs for R-1.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 3706/2021 & CM APPL. 11229/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P. (C) 3707/2021 & CM APPL. 11230/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Siddharth Khatana, Advocate for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 3729/2021 & CM APPL. 11269/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 3737/2021 & CM APPL. 11277/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Ranvir Singh (CGSC) for R-1.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 3859/2021 & CM APPL. 11647/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Anuj Aggarwal, ASC, GNCTD with Ms. Ayushi Bansal, Mr. Sanyam Suri and Ms. Arshya Singh Advocates for R-1 to 5.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 4045/2021 & CM APPL. 12213/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Sanjeev Sabharwal, Senior Panel Counsel with Ms. Shweta, Advocate for UOI.
Mr. Harish Kumar Garg and Ms. Khushboo Sharma, Advocates for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 4067/2021 & CM APPL. 12306/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 4259/2021 & CM APPL. 12948/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
Mr. Ripudam Bhardwaj, CGSC with Mr. Vinod Tiwari, Advocate for R-1 & 3.
W.P.(C) 4304/2021 & CM APPL. 13108/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Satya Ranjan, (Senior Panal Counsel) with Mr. Kautilya Birat, Advs for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 4551/2021 & CM APPL. 13949/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Avnish Singh, (SCGC) and Mr. Aditya Vikram Dembela, Advocates.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 4812/2021 & CM APPL. 14844/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Ranvir Singh (CGSC) for R-1.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 5394/2021 & CM APPL. 16683/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 5395/2021 & CM APPL. 16686/2021
Mr. Anurag Ojha & Deepak Somani, Advocate, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Niraj Kumar, Senior Central Govt. Counsel for UOI.
Ms. Varsha Sharma, Advocate for Mr. Jawahar Raja, ASC (C) for GNCTD.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
Mr. G.D. Sharma, Advocate for R-4.
W.P.(C) 9684/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Divyam Nandrajog, Panel Counsel, GNCTD, Mr. Mohd. Shahid Khan, Mr. Mayank Kamra, Advocates, for the Respondents.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 14317/2021 & CM APPL. 45148/2021
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Ripu Daman Bhardwaj (CGSC) for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 1182/2022 & CM APPL. 3442/2022
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Sanjeev Uniyal & Mr. Dhawal Uniyal, Advs for R-1.
Mr. Tanveer Oberoi, Advocate for (AIIMS).
W.P.(C) 1054/2023 and CM APPL. 4164/2023
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Advocate for UOI.
Mr. Ripu Dhawan Bhardwaj, CGSC with Mr. Hardik GP for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS)
W.P.(C) 1079/2023 and CM APPL. 4248/2023
Mr. Ashok Agarwal, Mr. Kumar Utkarsh & Mr. Manoj Kumar, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Kirtiman Singh, CGSC with Ms. Vidhi Jain, Advocate for UOI.
Mr. Ripu Dhawan Bhardwaj, CGSC with Mr. Hardik GP for UOI.
Mr. Tanveer Oberoi, Advocate for (AIIMS)
W.P.(C) 2614/2023
Ms. Sonia Sharma with Ms. Neha Chug, Mr. Vijay Chandra and Mr. Tushant, Advocates, Ms. Shyel Trehan, Mr. Rohan Poddar & Ms. Shivalika Rudrabatla, Advocates, for the Petitioner.
Mr. Nitinjya Chaudhry, Sr Panel Counsel with Mr. Abhishek, GP.
Mr. Tanveer Oberoi, Advocate for (AIIMS).

JUDGMENT

Prathiba M. Singh, J. (Oral)

1. This hearing has been done through hybrid mode.

2. The present batch of petitions has been filed by the Petitioners who are mostly children suffering from Rare Diseases. The case of the Petitioners is that medicines and therapies for the said diseases are exorbitantly expensive. These matters have been heard by the Court from time to time and various directions have been issued for enabling treatment and making medicines available to the Petitioners.

3. On the last date of hearing, Mr. Rajiv Manjhi, Joint Secretary, Ministry of Health and Family Welfare and a team of doctors from AIIMS had appeared before the Court and various submissions were made about clinical trials and the amount that can be released per patient. Since the hearing was inconclusive on the said date, the Court had issued the following directions:

    "8. Today, the hearing was inconclusive. In order to have an effective further hearing the following directions are issued:

    (i) The team from AIIMS who is present before the Court today shall place on record a complete chart of all the clinical trials in which AIIMS is involved for the two medical conditions i.e. DMD and Gaucher.

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