IN THE HIGH COURT OF JUDICATURE AT PATNA
Sanjay Karol, P. B. Bajanthri, JJ.
Amit Kumar Agarwal, S/o Sri Mohan Lal Agarwal - Petitioners
Versus
The Union of India through the Secretary, Ministry of Health and Family Welfare - Respondents
Civil Writ Jurisdiction Case No.10986 of 2021
Decided On : 01-11-2021
Right to Persons with Disabilities Act, 2016 – Section 25 – Constitution of India – Articles 21, 47 and 226 – Relief to patients suffering from Thalassemia – By virtue of Article 47 of Constitution of India, State is under obligation to ensure raising standard of public health – Health enables a person to live their life with dignity – Death of even a single person suffering from disability for lack of resources is an affront to commitments of State to international law – Petitioners are all individuals directly or indirectly affected by Thalassemia, and they are all committed to working to better people suffering from this disease – In light of COVID-19 pandemic condition of patients suffering from Thalassemia in State of Bihar has become increasingly critical with apparent rise in fatalities with each passing day – This can be attributed to shortage of blood and lack of arrangements for proper treatment – An important aspect of striving to achieve social justice is to ensure realization of Right to Health for all citizens, in recognition of it being a part of Right to Life under Article 21 of Constitution of India – If treatment is scarcely available or, in an even worse scenario, denied, it puts patient of Thalassemia squarely in path of danger to their life, infringing their dignity – Unavailability or shortage of blood, medicines or any other essentialities needed for treatment of Thalassemia patients is not a pathway available to Government – State is under obligation to compensate family who died solely on account of non-availability of adequate medical facilities – directions issued. (Paras 2, 22, 23, 26 to 28)
(2021) 5 SCC 370; LPA 255 of 2020; (1995) 3 SCC 42; (1996) 4 SCC 37; (1997) 2 SCC 83; (2018) 8 SCC 32; (2014) 5 SCC 438 – Relied.
JUDGMENT :
Sanjay Karol, J.
Following issues arise for consideration in the present petition:-
available all facilities, including blood, to patients who have the disability of Thalassemia?
2. Is the refusal of blood on account of unavailability to patients suffering from Thalassemia a ground available to the State?
3. Is the State obligated to pay compensation to the families of the patients suffering from Thalassemia who died due to the non-availability of adequate medical facilities?
2. The petitioners in the present case are all individuals directly or indirectly affected by Thalassemia, and they are all committed to working to better the people suffering from this disease. Allegedly, in light of the COVID-19 pandemic and the condition of patients suffering from Thalassemia in the State of Bihar has become increasingly critical with an apparent rise in fatalities with each passing day. This can be attributed to a shortage of blood and a lack of arrangements for proper treatment. Numerous reports published in National Dailies and online portals have reported on the sad state of affairs.
3. The petitioners have cited seven real-life instances from where an apparent lack of proper medication and blood has resulted in five fatalities, namely Sonu Kumar (aged nine years), son of Vijendra Yadav, resident of village-Basvelli, P.O. Tolli, P.S.-Dagrawa, District –Purnea, Bihar, Diwakar Kumar (aged 2.5 years) son of Sri Ajit Kumar, resident of Village-Kairin, P.O. Dulmanjhi, District-Purnea, Bihar; Shivam Kumar (aged five years) son of Sri Mantu Kumar Mandal, resident of village-Bhavanipur, P.O.-Dulmanjhi, District-Purnea, Bihar; Qumar Parveen (aged six years) son of Sri Shakir Alam, resident of Village-Bhokraha, P.O.-Dulmanjhi, District-Purnea, Bihar; and Sahil (aged three years) son of Sri Ibnul Haq, resident of Village-Amgachi, District-Purnea, Bihar, and the other two, namely Shubham (aged seven years) son of Sri Anil Kumar Sahani, resident of Muzaffarpur, Bihar and Md. Talha Tanveer (aged three years), son of Md. Tanveer Alam, residing at Muzaffarpur, Bihar, continue to suffer. One common contention of all was the lack of medical resources and other essential equipment for treating Thalassemia patients. Some patients and their relatives have further contended that blood is being sold on the black market. The petitioners contend that each of these instances brings forth a chilling realization for the need to introspect.
4. Thalassemia is an inherited blood disorder characterised by less Oxygen-carrying protein (haemoglobin) and fewer blood cells in the body than the normal. In brief, Thalassemia is inherited from parents to children through genes. There would be blood disorder when the body does not make enough of a protein called haemoglobin, an important part of red blood cells. When there isn’t enough haemoglobin, the body’s red blood cells don’t function properly and they last shorter periods of time, so there are fewer healthy red blood cells travelling in the bloodstream. Red blood cells carry oxygen to all the cells of the body. Oxygen is a sort of food that cells use to function. When there are not enough healthy red blood cells, there is also not enough oxygen delivered to rest of the cells of the body, which may cause a person to feel tired, weak or short of breath. This is a condition called anaemia. People with Thalassemia may have a mild or severe anaemia. Severe anaemia can damage organs and lead to death.
5. Prevention of Thalassemia would be very hard since the disease is passed from parents to children. Treatment consists of vitamins and transmission of blood in fact for the purpose of medication vitamin, blood transmission and iron reducer are required to be taken note of.
6. A significant equipment requirement for treating Thalassemia patients is filters used to ensure that the iron level in the bloodstream of patients does not increase beyond the acceptable threshold. If
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