AI Overview...
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Duchenne Muscular Dystrophy (DMD) - A rare, progressive genetic disorder primarily affecting boys, characterized by muscle weakness and degeneration. Several sources highlight efforts to provide treatment, including clinical trials, government support, and advocacy for free or affordable therapy Aviraj Garg VS Union Of India - Delhi, Master Medhansh Jhawar @ Madhav Through His Natural Guardian VS Rajesh Bhushan - Delhi, Master Arnesh Shaw VS Union of India - Delhi, Arnesh Shaw vs Union of India - Delhi.
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Treatment Challenges - DMD treatments are often expensive, with ongoing legal and medical efforts to secure free or subsidized access to therapies such as Antisense Oligonucleotide (AON) therapy. Courts and authorities have been urged to facilitate access and support research initiatives Master Medhansh Jhawar @ Madhav Through His Natural Guardian VS Rajesh Bhushan - Delhi, Master Arnesh Shaw VS Union Of India - Delhi, Master Arnesh Shaw. VS Union of India & Anr - Delhi.
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Government and Legal Interventions - The Indian judiciary and health authorities have directed exploration of treatment options, including clinical trial registration and procurement of medications. Courts have also addressed custody and care issues for affected children, emphasizing the need for timely intervention Aviraj Garg VS Union Of India - Delhi, Master Medhansh Jhawar @ Madhav Through His Natural Guardian VS Rajesh Bhushan - Delhi, SAJIL T DEVADAS vs HONEY SABU - Kerala, SAJIL T.DEVADAS vs HONEY SABU - Kerala.
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Policy and Research - The Draft Health Policy for Rare Diseases (2020) includes DMD in its list of rare diseases, advocating for government support and inclusion in treatment schemes. The National Rare Diseases Committee is tasked with exploring medication procurement for DMD and similar conditions Master Arnesh Shaw VS Union of India - Delhi, Master Arnesh Shaw VS Union Of India - Delhi.
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Case Examples - Multiple individual cases illustrate the physical and legal struggles faced by DMD patients and their families, highlighting the importance of early diagnosis, continuous treatment, and legal support for access to care SAJIL T.DEVADAS vs HONEY SABU - Kerala, Deepak Kumar Satsangi VS Sanjeevan Medical Research Centre (P) Ltd. - Consumer.
Analysis and Conclusion:
Duchenne Muscular Dystrophy remains a significant medical and legal challenge in India, with ongoing efforts to improve access to treatment, including clinical trials, policy support, and judicial intervention. Recognizing DMD as a rare disease has spurred initiatives aimed at providing affordable therapies, but substantial gaps in treatment accessibility and funding persist. Continued advocacy, policy implementation, and research are essential to enhance quality of life and survival prospects for individuals with DMD.
Search Results for "Duchenne Muscular Dystrophy"
2021 0 Supreme(Del) 1755 • India - Delhi
PRATHIBA M. SINGH
Muscular Dystrophy (DMD). ... Muscular Dystrophy (DMD). ... diseases and directed the Union of India to explore a confidential proposal for making therapy available for children suffering from Duchenne ... The same include :- (i) M/s Medspace Clinical Research India Private Limited (ii) M/s Muscular Dystrophy Patients Welfare Society p align= ... Arun Shastry, Chief Scientific Officer, Dystrophy Annihilation Research Trust (DART) (M:9840219833) ....
2023 0 Supreme(Del) 245 • India - Delhi
PRATHIBA M. SINGH
All India Institute of Medical Science – Duchenne Muscular Dystrophy – Administration of Antisense – Petitions ... These are writ petitions filed by two minors, who are suffering from Duchenne Muscular Dystrophy (DMD). The prayer in the petitions is to consider the case of the Petitioners for treatment through administration of Antisense Oligonucleotide (AON) therapy and other treatment free of cost. ... However, despite repeated orders, the patients of Duchenne #HL_S....
2024 0 Supreme(Del) 688 • India - Delhi
PRATHIBA M. SINGH
Muscular Dystrophy, Spinal Muscular Atrophy Fact of the Case: The court reviewed the ... notification G.S.R. 235 (E) dated 29th March, 20232 - List 38 - Gaucher Disease Type I and III, Hunter syndrome (MPS II), Pompe Disease, Duchenne ... Muscular Dystrophy A copy of registration of the Clinical Trial as registered with the Clinical Trial Registry-India bearing CTRI No. ... In terms of the said gazette notification, List 38 includes inter alia the following Rare Diseases: Gaucher Dise....
2017 Supreme(Online)(KER) 14102 • India - High Court of Kerala
A.M.SHAFFIQUE, K.RAMAKRISHNAN, JJ
Fact of the Case: The petitioner sought interim custody of his seriously ill child under treatment for Duchenne Muscular ... Dystrophy, which was denied by the Family Court due to the application being deemed belated amid ongoing conciliation. ... It is submitted by the learned counsel for the petitioner that the child is suffering from a peculiar disease known as Duchenne Muscular Dystrophy (DMD) and life expectancy is up to 17 years. He is presently 14 years.
• India - Delhi High Court
PRATHIBA M.SINGH
(Paragraph 8) ... ... Facts of the case: ... The petitioners, children with Duchenne Muscular Dystrophy, sought governmental support ... Both these matters concern children, who are suffering from a rare disease known as Duchenne Muscular Dystrophy (hereinafter referred as "DMD"). ... Duchenne Muscular Dystrophy" 6. Insofar as group 3 diseases are concerned, the relevant proposal in the Draft Health Policy is contained in par....
2021 0 Supreme(Del) 1827 • India - Delhi
PRATHIBA M. SINGH
Muscular Dystrophy (DMD) seeking free treatment for the exorbitantly expensive drug. ... Draft Health Policy for Rare Diseases 2020 - Article 21 Fact of the Case: The case concerns children suffering from Duchenne ... Both these matters concern children, who are suffering from a rare disease known as Duchenne Muscular Dystrophy (hereinafter referred as "DMD"). ... Duchenne Muscular Dystrophy " 6. Insofar as group 3 diseases are co....
2023 0 Supreme(Del) 3219 • India - Delhi
PRATHIBA M. SINGH
The court addressed the non-continuation of medication for Duchenne Muscular Dystrophy (DMD) patients and directed a specific position ... 11610/2017 - The court directed the National Rare Diseases Committee to explore the possibility of procuring medication for Spinal Muscular ... Duchenne Muscular Dystrophy (DMD) 12. ... Spinal Muscular Atrophy (SMA) 3. In W.P.(C) 11610/2017 titled FSMA India Charitable Trust v. ... He submits that the Company ....
2017 Supreme(Online)(KER) 5716 • India - High Court of Kerala
A.M.SHAFFIQUE, K.P.JYOTHINDRANATH, JJ
Fact of the Case: The petitioner sought interim custody of his son suffering from Duchenne Muscular Dystrophy (DMD) ... He has been diagonised of a rare disease known as Duchenne Muscular Dystrophy (hereinafter referred to as 'DMD').
• India - Delhi High Court
PRATHIBA M.SINGH
... ... Facts of the case: ... Petitioners, mostly children, suffered from rare diseases, including Duchenne Muscular Dystrophy, ... Muscular Dystrophy (hereinafter, "DMD")1) Master Arnesh Shaw7 yearsWP(C) 5315/20202) Master Aviraj Garg4 yearsWP(C) 10782/2020Rare DiseasesPetitionersAgeWrit Petition NumberDuchenne
• India - Consumer
AJIT BHARIHOKE, REKHA GUPTA
Late Mr Rahul Satsangi was suffering from Duchenne Muscular Dystrophy (DMD). ... ... Diagnosis : Duchenne Muscular Dystrophy.” ... 109. It is obvious from the above that Rahul Satsangi was a confirmed patient of Duchenne Muscular Dystrophy and even in March 1997 his chest X-ray had shown Cardiomegaly i.e. enlargement of the heart. ... However, mere chills and rigors in a patient suffering from Duchenne #HL_START....
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